Saturday, July 04, 2009

Synopsis of project
Staff from the Middle Alabama Area Agency on Aging will be trained to implement components of the REACH II intervention, one of the most highly effective and widely tested interventions for family caregivers. This intervention will be compared with a group of caregivers receiving educational pamphlets and check-in phone calls. These caregivers will receive the full intervention at a later time. The ultimate goal in Alabama is to make REACH interventions available in every community through the state network of Area Agencies on Aging. Dr. Louis Burgio, one of the original REACH II investigators and Director of the Center for Mental Health and Aging (CMHA) at the University of Alabama, will assist with implementation of the program.
Intervention Delivered by
AAA Case Managers
Delivered where
In caregiver / care recipient home
Care Recipient Profile
Individuals with dementia – mean age of 81
Caregiver Profile
Family caregivers of dementia patients – 77% female, mean age of 61.
Number of participants
60 dementia patients / 60 caregivers; 30 dyads in each of the two groups
1 dedicated staff member
Intervention Strategies
Modified REACH caregiver training includes:
Education and skills training on Alzheimer’s Disease
Caregiver health
Home Safety
Behavior management
Stress management
Comparison Intervention includes:
Academic/technical assistance provided
University of Alabama CMHA staff will provide modified REACH II training and on-going consultation to the AAA staff member.
Principal Investigator: Dr. Louis Burgio
Site Contacts
Leila Heptinstall recently enrolled a new caregiver in the Alabama REACH program. This caregiver has a heartfelt and interesting story. Both of her parents suffer from dementia, and this courageous caregiver made the decision to care for both of them in her home. What makes this scenario even more complicated is the fact that her parents divorced when she was a teen, and had not seen or spoken to each other in many, many years. Caring for a person with Alzheimer's is difficult in itself, but caring for two patients with dementia who don't get along could challenge even the most competent caregiver. Fortunately, this caregiver's parents forgot their animosity towards each other - in fact they did not remember each other at all - which proved to be a blessing in this case.
This unusual story drives home the point that no two caregiving situations are alike. Thanks, Leila, for sharing this caregiver's story, reminding us that every home is different and many caregivers will have unique challenges which will need to be addressed when implementing a caregiving intervention.
On May 29, 2008, the J&J/RCI team received a brief overview of the Alabama REACH project from M4A director Carolyn Fortner and staff members Kelly Lippert-Flick and Leila Heptinstall. Also present were collaborating partners Dr. Lou Burgio and Stacey Jernigan from the Center for Mental Health & Aging at the University of Alabama.
During our trip to the Calera, Alabama area, we visited the home of Mr. and Mrs. Walton. Mr. Walton is a full-time caregiver for his wife, and has been enrolled in the intervention for a short while. Mrs. Walton was diagnosed with Alzheimer's Disease two years ago. Mr. Elvis Walton (his real name!) had made his living singing in a quartet called “The Keymasters”. Elvis is a very outgoing person, so it was not surprising to learn that when respite care is available to him, he takes the opportunity to get out of the house and interact with lots of people. While a loving respite worker stays with his wife, Elvis works at the local Piggly Wiggly grocery store bagging groceries.
We met a very friendly and upbeat Mr. Walton at the “Pig”, where he posed for pictures and expressed gratitude to Leila and the program for helping him deal with the demands of being a full-time caregiver.
Commissioner Irene Collins of the Alabama Department of Senior Services met with our group in the afternoon. She is such a wonderful role model to other senior-level state officials for how to partner effectively with others to initiate and expand caregiver support services on a state-wide level. Read article about Commissioner Collins and the ADSS.
Dr. Burgio had several exciting updates on Alabama REACH. He has submitted a paper from the ADDGS project to the journal “The Gerontologist” which he feels will be accepted for publication. Also, the Alabama REACH project was used as a case example in the recent CDC publication “Assuring Healthy Caregivers: A Public Health Approach to Translating Research into Practice”. Lou is currently working with the CDC to produce an “action guide” - a procedural manual modified to be a step-by-step guide so that Agencies can more easily implement the program on their own. Look for links to these publications and the action guide on the RCI website as soon as they become available.
Dr. Burgio has recently been named the Harold R. Johnson Chair in Gerontology at the University of Michigan. His ultimate goal is to set up a training system at the University of Michigan to certify interventionists and master trainers. Although we are sad to see him leave the University of Alabama, Lou has laid groundwork that will enable him to stay actively involved in the project from his new home at the University of Michigan.
The team in Alabama is making great strides in caregiving, keeping that state on the leading edge of caregiver support!
Project Update - March 24, 2008
The Middle Alabama AAA received a letter recently from one of the dementia caregivers in our program. In the letter, she expressed appreciation for the relief she has experienced as a result of her participation in the program.
This joyful letter was in sharp contrast to an earlier letter written to us by the same caregiver. Months ago, this caregiver wrote requesting services and describing the stress she experienced due to her caregiving role.
All of the staff members working on this project love receiving letters like this. While research data has proven the effectiveness of REACH II in easing burden for caregivers, it is still nice to get first-hand accounts from the caregivers about how the program is impacting their lives.
Read this caregiver's letters.