Caregiver Resources

AARP Caregiving Website - Contains articles, tools and forums to assist caregivers in navigating the "labyrinth of caregiving". Features articles and videos by best-selling author Gail Sheehy.

AbleData - provides objective information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. They serve the nation's disability, rehabilitation, and senior communities. They do not produce, distribute or sell any of the products listed on this website, but provide information on how to contact manufacturers or distributors of the products.

A Place for Mom - A Place for Mom (APFM) is dedicated to being a comprehensive senior living resource. We aspire to be leaders in the senior care industry, providing valuable information, resources, and best-in-class customer service to families and partners.

Administration for Children and families - The Administration for Children and Families (ACF) is a federal agency funding state, territory, local, and tribal organizations to provide family assistance (welfare), child support, child care, Head Start, child welfare, and other programs relating to children and families.

Administration on Developmental Disabilities - The Administration on Developmental Disabilities ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally-competent needed community services, individualized supports, and other forms of assistance that promote self-determination, independence, productivity, and integration and inclusion in all facets of community life.

Administration on Aging - to develop a comprehensive, coordinated and cost-effective system of home and community-based services that helps elderly individuals maintain their health and independence in their homes and communities.

Adventures in Movement for the Handicapped - AIM helps mentally challenged, visually impaired, hearing impaired, physically handicapped, attention deficit disorder (ADD), attention deficit hyperactive disorder (ADHD), learning disabilities, severe behavior disorder (SBD), severe behavior handicap (SBH), autism, the geriatric population, and other children and adults with special needs reach their highest potential through the AIM method. There is never a charge to handicapped children or their parents for our service, and no child is ever turned away. All funds are derived through donations from individuals, foundations, businesses, corporations, organizations, memberships, and fund raising events. is an online community that connects people caring for elderly parents to other caregivers, personalized information, and local resources. has become the trusted resource for exchanging ideas, sharing conversations and finding credible information for those seeking elder care solutions.

AIDS Clinical Trials Group-NIAID Office of Communcation and Government Relations - The Division of Acquired Immunodeficiency Syndrome (DAIDS) was formed in 1986 to develop and implement the national research agenda to address the HIV/AIDS epidemic. Specifically, the mission of DAIDS is to help ensure an end to the HIV/AIDS epidemic by increasing basic knowledge of the pathogenesis and transmission of the human immunodeficiency virus (HIV), supporting the development of therapies for HIV infection and its complications and co-infections, and supporting the development of vaccines and other prevention strategies.

Al-Anon Family Group - In Al-Anon, members do not give direction or advice to other members. Instead, they share their personal experiences and stories, and invite other members to “take what they like and leave the rest”—that is, to determine for themselves what lesson they could apply to their own lives.

Alcoholics Anonymous
- Alcoholics Anonymous® is a fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem and help others to recover from alcoholism. The only requirement for membership is a desire to stop drinking.

Alexander Graham Bell Association for the Deaf - helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.

Allergy and Asthma Network - Allergy & Asthma Network Mothers of Asthmatics (AANMA) is the leading nonprofit family health organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions. From diagnosis to control, from diapers to college — AANMA is your one-stop, family-to-family support network.

Alliance of Genetic Support Groups - the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.

Alzheimer's Association - The mission of the Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. A new component of the website, Alzheimer's Navigator, can help you figure out your next steps when a loved one has been diagnosed with AD.

American Medical Association - To promote the art and science of medicine and the betterment of public health.

American Academy of Child and Adolescent Psychiatry - The AACAP (American Academy of Child and Adolescent Psychiatry) is the leading national professional medical association dedicated to treating and improving the quality of life for children, adolescents, and families affected by these disorders.

American Association for Geriatric Psychiatry - The American Association for Geriatric Psychiatry is a national association representing and serving its members and the field of geriatric psychiatry. AAGP promotes the mental health and well-being of older people through professional education, public advocacy, and support of career development for clinicians, educators, and researchers in geriatric psychiatry and mental health.

American Association for Marriage and Family Therapy
- (AAMFT) is the professional association for the field of marriage and family therapy. We represent the professional interests of more than 24,000 marriage and family therapists throughout the United States, Canada and abroad.

American Association of Kidney Patients
- We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.

American Association of Pastoral Counselors - (AAPC) is a membership and certification organization whose mission is to provide spiritually informed and integrated counseling, collaborative community based services, training and education in order to enhance the well being of individuals, families and communities.

American Association of the Deaf-Blind - ensures that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community.

American Association on Intellectual and Developmental Disabilities - AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.

American Bar Association Commission on Legal Problems of the Elderly
- The mission of the ABA Commission on Law and Aging is to strengthen and secure the legal rights, dignity, autonomy, quality of life, and quality of care of elders.

American Brain Tumor Association
- advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis.

American Cancer Society - Together with our millions of supporters, the American Cancer Society (ACS) saves lives and creates a world with less cancer and more birthdays by helping people stay well, helping people get well, by finding cures, and by fighting back.

American Chronic Pain Association - To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.

American Council of the Blind - The American Council of the Blind strives to increase the independence, security, equality of opportunity, and quality of life, for all blind and visually-impaired people.

American Diabetes Association - to prevent and cure diabetes and to improve the lives of all people affected by diabetes.

American Disability Association - To meet the informational needs of Americans from Uruguay to Alaska with diverse disabilities. To promote awareness of disability culture by building bridges of understanding among all people. To enhance our collective quality of life and access to freedom.

American Heart Association - Our mission is to build healthier lives, free of cardiovascular diseases and stroke.

American Hospital Association - (AHA) is the national organization that represents and serves all types of hospitals, health care networks, and their patients and communities.

American Kidney Fund - The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

American Liver Foundation - facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.

American Lung Association - the leading organization working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research.

American Nurses Association - Nurses advancing our profession to improve health for all.

American Paralysis Association Christopher and Dana Reeve Foundation - The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

American Psychiatric Association - promote the highest quality care for individuals with mental disorders (including intellectual developmental disorders and substance use disorders) and their families.

American Psychological Association
- advance the creation, communication and application of psychological knowledge to benefit society and improve people's lives.

American Society of Hypertension - to translate and promote current research in hypertension and vascular disease into effective treatment strategies for patients with hypertension and associated disorders.

American Society on Aging - an association of diverse individuals bound by a common goal: to support the commitment and enhance the knowledge and skills of those who seek to improve the quality of life of older adults and their families.

American Urological Association - to promote health, provide hope and promise a future free of urological disease, including cancer.

Anxiety Disorder Association of America
- Promotes professional and public awareness of anxiety, depression, and related disorders and their impact on people's lives.

Association for Adult Development and Aging c/o American Counseling Association - to enhance the quality of life in society by promoting the development of professional counselors, advancing the counseling profession, and using the profession and practice of counseling to promote respect for human dignity and diversity.

Association for Children with Down Syndrome - ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.

Asthma and Allergy Foundation of America - promotes advocacy for public policies to improve the quality of life for people with asthma and allergies.

Autism Network International - ANI provides a forum for autistic people to share information, peer support, and tips for coping and problem-solving.

Autism Services Center - Servicing people with autism, other developmental disabilities and those who care for and about them.

Autism Society of America - increases public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

American Red Cross Family Caregiver Program - This program offers caregivers a helping hand by providing a variety of information-packed sessions covering topics such as home safety, healthy eating, bathing, legal and financial issues, and taking care of yourself.

Be the Match Registry - As a leader in the field of marrow and cord blood transplantation, we work every day to connect patients, doctors, donors and researchers to the resources they need.

Betty Ford Center - To provide effective treatment services for alcoholism and other drug dependencies.

Birth Defect Research for Children Inc. - provides parents and expectant parents with information about birth defects and support services for their children.

Brain Injury Association of America - Through advocacy, education and research, we bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them.

Cancer Hope Network
- To provide one-on-one support to people undergoing treatment for cancer and to their families.

Cancer Information Service Office of Cancer Communications
- supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Caregiver's Briefcase
- a user-friendly, online resource to help psychologists and other health and social service professionals assist family caregivers through individual and organizational practice, research, teaching and community service. Family caregivers will also find useful information in the resources section of the Briefcase.

Caregiver Coalition of Northeast Florida
- The Coalition’s mission is to promote awareness and knowledge of, sensitivity to and support for family caregiving in Northeast Florida. Our hope is that all family caregivers will have knowledge of and access to resources that support them and those in their care. - For the past 17 years, Caregiver Media Group has been providing information, advice and support specifically addressing the needs of family and professional caregivers through its website, the popular Today's Caregiver magazine, national "Fearless Caregiver" Conferences, and Fearless Caregiver weekly newsletter. 

Caregiving in America - Through a collaboration of experts and strategic partners who offer helpful services, information and education, this new monthly magazine hopes to  encourage, inspire and uplift family caregivers nationwide. Each issues includes personal stories, professional articles and other valuable resources.

Caregiving Ministries - Through a living example of “servant leadership,“ Caregiving Ministries shall provide organization, leadership, support and caregiving resources to local, regional and national faith-based organizations who have, or desire to establish, caregiving ministries - This website was created to help those caring for their aging parents and other loved ones. Their mission is to give caregivers information and other resources they need to make better decisions, save time, and feel more supported. provides  practical information, easy-to-use tools, and personal support needed during this challenging time.

Caring Connections - Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life.Caring Connections provides free resources and information to help people make decisions about end-of-life care and services before a crisis and brings together community, state and national partners working to improve end-of-life care through a national campaign called It's About How You LIVE.

Caring Today - A leading provider of practical advice and knowledge for family caregivers since 2004, Caring Today has addressed the needs of America's 50 million caregivers with expertise, understanding and answers, through its quarterly national magazine and this website.

CareLinx - is a secure home care social network that empowers families to directly connect with compatible caregivers and cost-effectively manage all their home care services online.

Celiac Sprue Association/USA - dedicated to helping individuals with celiac disease and dermatitis herpetiformis worldwide through research, education and support.

Centers for Disease Control and Prevention - Healthy Aging Program - This program serves as the focal point for older adult health at the CDC, establishing programs, developing tools, and providing a comprehensive approach to helping older adults live longer, high-quality, productive, and independent lives. Includes caregiving as a public health priority.

Center for Family Support - committed to providing support and assistance to individuals with developmental and related disabilities, and to the family members who care for them.

Children's Hospice International - to ingrain the hospice concept into pediatrics that it isn't considered a separate specialty, rather, an integral part of health care for children and adolescents.

Children's Organ Transplant Association
- helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.

City of Hope - its a compassionate patient care, innovative science and translational research, which rapidly turns laboratory breakthroughs into promising new therapies.

Cocaine Annoymous World Services - is a fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem, and help others to recover from their addiction.

Coma /Traumatic Brain Injury Association, Inc. - is a non-profit support organization for coma and brain injury survivors, family members, friends and professionals.

Compeer, Inc - develops, delivers and supports model programs that inspire and engage communities through the power of volunteer friends and mentors of our Compeer affiliate programs.

Cooley's Anemia Foundation - advancing the treatment and cure for this fatal blood disease, enhancing the quality of life of patients and educating the medical profession, trait carriers and the public about Cooley's anemia/thalassemia major.

Consumer Financial Protection Bureau - The Office of Financial Protection for Older Americans gives seniors information and tools to navigate safely through financial challenges.

Crohn's and Colitis Foundation of America - The mission of the Crohn's & Colitis Foundation of America (CCFA) is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

Cystic Fibrosis Foundation - We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. 

eCare Diary - Provides comprehensive information, tools and resources to help those seeking and providing long term care. A unique feature is the Care Diary, a set of online tools designed to make coordination of care and sharing of information easy amongst family members and other caregivers. eCare Diary also has a comprehensive database of nursing home and home care services, guides on long term care financing and information on important health care documents everyone should have.

Eldercare Locator - The Eldercare Locator, a public service of the Administration on Aging, U.S. Department of Health and Human Services, is a nationwide service that connects older Americans and their caregivers with information on senior services.

Elder Law Answers - Supports seniors, their families and their attorneys in achieving their goals by providing the most comprehensive information on the Internet about crucial legal issues facing seniors, a network of highly qualified elder law attorneys nationwide, and online practice tools for elder law attorneys.

Emory University School of Medicine - To improve the lives of individuals affected by Alzheimer's and related diseases through innovative research, education and compassionate care.

Epilesy Foundation of America - The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programs conducted at the national level, people with epilepsy throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country.

Eunice Kennedy Shriver National Institute of Child Health and Human Development - ensure that every person is born healthy and wanted, that women suffer no harmful effects from reproductive processes, and that all children have the chance to achieve their full potential for healthy and productive lives, free from disease or disability, and to ensure the health, productivity, independence, and well-being of all people through optimal rehabilitation.

Family Caregiving eXtension - Developed by the Cooperative Extension Services, this website is an interactive learning environment that strives to meet the educational and decision-making needs of family caregivers and the professionals who support them. Featuring articles, online educational sessions, and an "Ask the Expert" section, the website assists caregivers in finding and accessing local resources available to them. 

Family Caregiver Alliance - Free reports, fact sheets, newsletter, support groups, and care advice for families, caregivers, policy makers, providers and media. Includes a "Family Care Navigator" to assist in locating resources across the country.

Family Caregiving 101 - This site is designed to provide caregivers with the basic tools, skills andi nformation they need to protect their own physical and mental health while they provide high quality care for their loved one.

Federation for Children with Special Needs - provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.

Forbes Norris MDA/ALS Research and Treatment Center - Our mission is to serve our community by providing high quality, cost-effective health care service in a compassionate and respectful environment, which is supported and stimulated by education and research.

Georgia Brain & Spinal Injury Trust Commission - Funded exclusively through DUI fines, the Commission was created to help Georgians with a traumatic brain or spinal cord injury with injury-related expenses not covered by other means.  

Gerontological Society of America - To promote the conduct of multi- and interdisciplinary research in aging by expanding the quantity of gerontological research and by increasing its funding resources; to disseminate gerontological research knowledge to researchers, to practitioners, and to decision and opinion makers; and to promote, support, and advocate for aging education, and education and training in higher education.

Healthline - Healthline's mission is to improve health through information. We focus our efforts on offering readers and visitors to our site objective, trustworthy, and accurate health information, guided by the principles of responsible journalism and publishing.

Hearing Loss Association of America - The Mission of HLAA is to open the world of communication to people with hearing loss by providing information, education, support and advocacy.

Home Assessment Checklist - This printable PDF checklist can be used to assess home safety concerns. It provides sections on General Household, Bathroom, and Bedroom.

Hospital Hosts - Hospital Hosts was created to provide medical travelers and their loved ones with a solution to the lodging issue; a nationwide network of comfortable, economical housing options, ranging from B&B's to hotels to special facilities for hospital patients and families. And, sometimes, we can even help you find rooms in private homes, with families who understand exactly what you’re going through - because, in many cases, they’ve gone through it themselves.

Licensed Practical Nurse - Begun to advance knowledge of the profession for prospective LPNs while assembling information useful for the current practitioner, this site is now a repository of nursing information, with insight spanning the realm of nursing and healthcare theory to examinations of nursing specialties and common ailments. - provides data on nursing home care in the US. Their goal is to allow researchers to trace relationships between state policies, local market forces and the quality of long-termcare and enable policymakers to craft state and local guidelines that promote high-quality, cost-effective, equitable care for older Americans.

Mather LifeWays Institute on Aging - We provide practical solutions in the form of online courses, workplace toolkits, and workforce surveys.Through conducting applied research, we have developed award-winning, evidence-based education programs for professional and family caregivers who serve older adults.Staffed by researchers and educators, we are a global resource for information about wellness, successful aging service innovations, and educational programming.  

Medicare Caregiver Information - Assistance for caregivers that includes help with understanding billing, navigating Medicare, financial and legal issues, and care options. Includes tools such as "Your Discharge Planning Checklist" for patients and their caregivers preparing to leave a hospital,nursing home, or other health care setting. - is a new website from CMS. It presents extensive information on Medicaid and CHIP programs designed to help people and providers be better informed. As the result of efforts at CMS to revitalize the information about these programs available from the Federal government, this site focuses on items stakeholders said they care the most about including state-specific program information and search capabilities. - their mission is to provide caregivers with online training and education that improve the quality of care received by older adults.

MySeniorCare’s mission is to support families and their aging loved ones as they search for information, resources and providers of senior care. They provide families with a wide range of support and credible information: 500+ articles reviewed by industry experts serving on their advisory board, a member community featuring message boards, user and expert authored blogs and a question and answer section. The Care Provider Directory empowers users to search, compare and directly contact pre-screened home health care,assisted living facilities,and hospice providers in their local area. Their search tool allows users to search by the specific type of care they require and the payment method they would like to use. Users can also read user reviews of each provider and call toll-free numbers to schedule a free consultation.

National Alliance for Caregiving - Established in 1996, NAC is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.

National Center on Elder Abuse - NCEA serves as a national resource center dedicated to the prevention of elder mistreatment. To carry out its mission, the NCEA disseminates elder abuse information to professionals and the public, and provides technical assistance and training to states and to community-based organizations. The NCEA makes news and resources available on-line and an easy-to-use format; collaborates on research; provides training; identifies and provides information about promising practices and interventions; operates a listserve forum for professionals; and provides subject matter expertise on program and policy development.

National Elder Rights Training Project - the National Consumer Law Center's National Elder Rights Training Project is part of the National Legal Resource Center, a collaboration of organizations sponsored by the Administration on Aging. Here you can learn about upcoming webinars and download all the PowerPoints and recordings from past webinars.

National Family Caregivers Association - NFCA educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

Next Step in Care - Provides information and advice to help family caregivers and health care providers plan safe and smooth transitions for patients. Materials now available in Spanish and Chinese.

Prepare to Care: A Planning Guide for Families - The AARP Foundation has developed a guide to help you and other family members discuss and create a caregiving plan for yourself, aging parent, other relative, close friend or neighbor. The Prepare to Care planning guide also includes forms that you and your caregiving team can fill out and keep on file, so you will have in one place all the pertinent information about your loved one and his/her financial affairs, health needs, household matters, and more. 

Safe Living Guide - Published by the Public Health Agency of Canada, this guide to home safety for seniors contains detailed checklists on keeping your home safe, keeping yourself healthy and active, keeping track of your medicines, and information about safety aids and home adaptations.  

Seasons of Care - Is a collection of products and programs designed to help caregivers – ALL Caregivers (professional, paraprofessional, voluntary and family caregivers) build and strengthen resiliency to mitigate the stress that leads to caregiver burnout.

SeniorLiving.Org - Is a directory of senior living options, including independent living, assisted living, nursing homes, and other facilities and care services. The site does not accept paid advertising, and strives to provide complete, up to date, and unbiased information based on a geographical search. In addition, the Senior Living Library contains authoritative articles on a variety of topics.

Spouse READI (Resilience Education And Deployment Information) - The Spouse READI telephone support study is available to any military spouse across the country. Assistance is often needed after deployment to help cope with stress and reintegration issues that may arise. This research is focused specifically on military spouses or significant others who are willing to give their time to help themselves and others. This research program is sponsored by the Department of Defense and Memphis VA Medical Center, and is voluntary and completely confidential.

Strength for Caring - SFC is a comprehensive website designed to provide family caregivers with a broad range of expert content and information, an emerging on-line community, daily inspiration, and much needed support.

Support Network AHA / ASA
- Improve your life and the lives of others when you join the American Heart Association / American Stroke Association Support Network. Share your experiences, give and get emotional support. If you are the caregiver, there are others just like you who can help.

The Dignity Project - The newest offering from Music for the Soul, the Dignity CD offers encouragement and support to caregivers through music and the spoken word.

This Caring Home - Provides tips and tools to enhance home safety for persons with Alzheimer's and other forms of dementia. Highlights include a virtual home, product guides, videos and animations.

VA Caregiver Support - This newly redesigned website offers a variety of resources to family caregivers of our nation's veterans.

Videocaregiving - a new website from Terra Nova Films dedicated to "streaming" visual educational material to family caregivers. What makes this site unique is its almost exclusive use of video in focusing on the challenges faced by the caregiver.

Well Spouse Association - A nonprofit membership organization that advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.