Friday, July 03, 2009
ABOUT RCI
Publications
Caring for You, Caring for Me:
Education and Support for Family & Professional Caregivers,
Second Edition, 2007
Description: This education program, conducted in five two-hour modules, addresses the needs of family and professional caregivers by bringing them together in a relaxed setting to discuss common issues, share ideas, and gain a better understanding
of each other’s perspective on what it means to be a caregiver. The goals are for caregivers to have the opportunity to:
For details about Caring For You, Caring For Me, and ordering information, click here
- Gain information on various topics related to caregiving;
- Learn ways of coping with the stresses and strains of being a caregiver
- Learn what resources are available locally, regionally and nationally
- Discover ways of working together to reduce frustrations and barriers in the caregiving experience
- Share common concerns and issues.
"Defining Quality in Long-term, Home and Community Care: A Working Paper"
Richard Birkel, Rosalynn Carter Institute for Caregiving
Proposes an approach to defining and measuring "Quality" that builds on the Institute of Medicine's Report Crossing the Quality Chasm" with the addition of domains that are unique to the context and process of long-term, home and community care.
To download the pdf, click here
"Caring for You, Caring for Me": A Ten-Year Caregiver Educational Initiative of the Rosalynn Carter Institute for Human Development
Caregiver support and education tend to be separated into programs that address the needs of professional or formal caregivers or the needs of family or informal caregivers. The two groups are rarely seen as having a set of shared caregiver needs. This article describes a caregiver education program that includes both family and professional caregiver issues (also called "generic" issues) developed at the Rosalynn Carter Institute (RCI) for Human Development.
To download a copy of the report click here.
Caregiving: A National Profile and Assessment of Caregiver Services and Needs
This paper reports the results of a study conducted by the University of Florida (UFL) on behalf of the National Quality Care Coalition (NQCC) of the Rosalynn Carter Institute for Caregiving (RCI).
The study compared data from two national caregiver surveys, state level data from the Centers for Disease Control and Prevention, and in-depth interviews with caregivers in North Carolina.
Results of the study show that efforts to support caregivers must take into account the very different caregiver needs to be found in each state and community. This finding lends major support to the approach taken by the RCI's CARE-NET program which aims to tailor caregiver support to meet the needs of local communities.
To download a copy of the report, click here.
Caregivers Together: Establishing Your Own CARE-NET
This guide is meant to provide a practical, step-by-step process for planning and carrying out the vital task of challenging community leaders to focus together on a community's caregiving needs.
To download a copy of the report, click here.
RCI Family Caregiver Assessment
The Rosalynn Carter Institute Family Caregiver Assessment is an instrument specifically designed to assess the psycho-social needs of family caregivers. It should be used by professionals providing services or assistance to families in which there are persons with serious illnesses or disabilities.
The document contains instructions and can be downloaded here.
Family Caregiving - Sharing Strategies, Celebrating Progress Conference Report June 26 - 17, 2002
This report is a summary of findings from the 2002 National Family Caregiving Conference, hosted by the National Health Council and the National Quality Caregiving Coalition of The Rosalynn Carter Institute for Caregiving. The conference brought together policymakers, advocates, health care professionals, academics/researchers, media, and caregivers themselves to celebrate the progress made around caregiving.
To download a copy of the report click here.
Helping Yourself Help Others: A Book for Caregivers
Carter, Rosalynn (1994) New York, NY: Times Books
Helping Yourself Help Others was written to inform, encourage, empathize with, and advocate for family caregivers. It also provides valuable insights for professional caregivers. Mrs. Carter discusses the feelings of caregivers; provides information about what caring means; explains the stages of caregiving; and offers ideas, information and advice to people currently providing care and to future caregivers. This guidebook offers practical solutions to caregivers' typical problems. It was written with empathy and sensitivity to help caregivers meet a difficult challenge head-on and find fulfillment and empowerment in their caregiving roles. Over 50 pages are devoted to addresses and phone numbers of organizations and a list of books helpful to caregivers.
Caring and Competent Caregivers
Moroney, Robert M., Dokecki, Paul R., Gates, John J, Haynes, Kelly, Noser, Newbrough, J.R. & Nottingham, Jack A. (1998)
This book was written by individuals associated with the National Quality Caregiving Coalition (NQCC) of The Rosalynn Carter Institute for Caregiving. It illustrates the caregiving needs and challenges that must be faced both now and in the coming years to meet our nations health care crisis, and includes possible ways of dealing with these needs. Chapters include: Caring and caregiving: the challenge we face; facts, trends, and realities of caregiving; the professional response; barriers to caregiving services and caring relationships; and caring about the caregiving: implications for the organization and delivery of services. Caring & Competent Caregivers is intended to be a foundation book for use by academicians conducting professional training programs, diverse health care and social service providers on the front lines, and students entering care professions. A lengthy annotated bibliography of resources is included.